Ehlers-Danlos syndrome (EDS) is a genetic disorder affecting collagen formation and function. It affects virtually every organ system, which can result in significant morbidity and mortality.Even among the small, but committed EDS community, the condition can present more questions than answers. Though some estimate that 1 in 5,000 people have an EDS subtype, it's still considered a rare disease. One 2019 estimate of the hypermobile subtype found that 1 in every 500 people in Wales has that syndrome.You should expect to manage Ehlers-Danlos syndrome symptoms for the rest of your life. There's no cure for EDS.
Can you live a full life with EDS : EDS cannot be 'cured' but many people learn over time how to control it and live full and active lives. The day-to-day management of most types of EDS is based around the right kind of exercise, physiotherapy and pacing. In addition you should seek referrals for any associated conditions you may have.
Is Ehlers-Danlos psychosomatic
Ehlers-Danlos syndromes (EDS) are a heterogeneous group of hereditary connective tissue disorders characterized by joint hypermobility, widespread musculoskeletal pain and tissue fragility. Psychiatric disorders and psychosocial impairment are common, yet poorly characterized, findings in EDS patients.
Is Ehlers-Danlos a Munchausen : Bloom says some other parents of children with EDS have been wrongly accused of “fabricated or induced illness (FII)” – a rare form of abuse, formerly known as Munchausen's syndrome by proxy, in which a parent or care giver deliberately causes symptoms or tries to convince doctors that a healthy child is ill.
Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor's even describe the skin as “velvet-soft”. Vascular Ehlers-Danlos syndrome can weaken your heart's largest artery (aorta), as well as the arteries to other regions of your body. A rupture of any of these larger blood vessels can be fatal. The vascular type can also weaken the walls of the uterus or large intestines — which also may rupture.
Do people with EDS age slower
Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor's even describe the skin as “velvet-soft”.Vascular EDS (vEDS) is a rare type of EDS and is often considered to be the most serious. It affects the blood vessels and internal organs, which can cause them to split open and lead to life-threatening bleeding.Although symptoms arise at childhood, they become more severe in adulthood. The major clinical manifestations of EDS include joint hypermobility, skin hyperextensibility, and generalized connective tissue fragility [3,4]. Although EDS is not thought of as autoimmune, someone should be considered disabled if their EDS is equivalent in severity to a listing-level case of autoimmune mixed connective tissue disease.
Is EDS linked to ADHD : Cederlöf et al. (2016) demonstrated in a large population-based case-control study that individuals with EDS or HSD, and their unaffected siblings, are at a significantly increased risk of neurodevelopmental disorders including ADHD (5.6 times more likely).
Is EDS linked to autism : Studies show that people with joint hypermobility, Ehlers-Danlos syndromes (EDS), and hypermobility spectrum disorder (HSD) have a higher likelihood of being autistic than would be expected by chance.
Is Ehlers-Danlos syndrome psychosomatic
By the time we see most of our patients with Ehlers-Danlos syndrome (EDS) – a rare genetic disorder that causes chronic pain, discomfort, and fatigue – they are on the brink of losing hope. Many have seen 10 or more doctors and some of those suggested their symptoms were psychosomatic. Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor's even describe the skin as “velvet-soft”.People with EDS tend to have a "marfanoid" appearance (e.g., tall, skinny, long arms and legs, "spidery" fingers), but physical appearance and features in several types of EDS also have characteristics including short stature, large eyes, and the appearance of a small mouth and chin, due to a small palate.
Does EDS get worse as you age : Although symptoms arise at childhood, they become more severe in adulthood. The major clinical manifestations of EDS include joint hypermobility, skin hyperextensibility, and generalized connective tissue fragility [3,4].
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Antwort Is EDS a real disorder? Weitere Antworten – Is Ehler Danlos syndrome real
Ehlers-Danlos syndrome (EDS) is a genetic disorder affecting collagen formation and function. It affects virtually every organ system, which can result in significant morbidity and mortality.Even among the small, but committed EDS community, the condition can present more questions than answers. Though some estimate that 1 in 5,000 people have an EDS subtype, it's still considered a rare disease. One 2019 estimate of the hypermobile subtype found that 1 in every 500 people in Wales has that syndrome.You should expect to manage Ehlers-Danlos syndrome symptoms for the rest of your life. There's no cure for EDS.
Can you live a full life with EDS : EDS cannot be 'cured' but many people learn over time how to control it and live full and active lives. The day-to-day management of most types of EDS is based around the right kind of exercise, physiotherapy and pacing. In addition you should seek referrals for any associated conditions you may have.
Is Ehlers-Danlos psychosomatic
Ehlers-Danlos syndromes (EDS) are a heterogeneous group of hereditary connective tissue disorders characterized by joint hypermobility, widespread musculoskeletal pain and tissue fragility. Psychiatric disorders and psychosocial impairment are common, yet poorly characterized, findings in EDS patients.
Is Ehlers-Danlos a Munchausen : Bloom says some other parents of children with EDS have been wrongly accused of “fabricated or induced illness (FII)” – a rare form of abuse, formerly known as Munchausen's syndrome by proxy, in which a parent or care giver deliberately causes symptoms or tries to convince doctors that a healthy child is ill.
Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor's even describe the skin as “velvet-soft”.
Vascular Ehlers-Danlos syndrome can weaken your heart's largest artery (aorta), as well as the arteries to other regions of your body. A rupture of any of these larger blood vessels can be fatal. The vascular type can also weaken the walls of the uterus or large intestines — which also may rupture.
Do people with EDS age slower
Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor's even describe the skin as “velvet-soft”.Vascular EDS (vEDS) is a rare type of EDS and is often considered to be the most serious. It affects the blood vessels and internal organs, which can cause them to split open and lead to life-threatening bleeding.Although symptoms arise at childhood, they become more severe in adulthood. The major clinical manifestations of EDS include joint hypermobility, skin hyperextensibility, and generalized connective tissue fragility [3,4].
Although EDS is not thought of as autoimmune, someone should be considered disabled if their EDS is equivalent in severity to a listing-level case of autoimmune mixed connective tissue disease.
Is EDS linked to ADHD : Cederlöf et al. (2016) demonstrated in a large population-based case-control study that individuals with EDS or HSD, and their unaffected siblings, are at a significantly increased risk of neurodevelopmental disorders including ADHD (5.6 times more likely).
Is EDS linked to autism : Studies show that people with joint hypermobility, Ehlers-Danlos syndromes (EDS), and hypermobility spectrum disorder (HSD) have a higher likelihood of being autistic than would be expected by chance.
Is Ehlers-Danlos syndrome psychosomatic
By the time we see most of our patients with Ehlers-Danlos syndrome (EDS) – a rare genetic disorder that causes chronic pain, discomfort, and fatigue – they are on the brink of losing hope. Many have seen 10 or more doctors and some of those suggested their symptoms were psychosomatic.
Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor's even describe the skin as “velvet-soft”.People with EDS tend to have a "marfanoid" appearance (e.g., tall, skinny, long arms and legs, "spidery" fingers), but physical appearance and features in several types of EDS also have characteristics including short stature, large eyes, and the appearance of a small mouth and chin, due to a small palate.
Does EDS get worse as you age : Although symptoms arise at childhood, they become more severe in adulthood. The major clinical manifestations of EDS include joint hypermobility, skin hyperextensibility, and generalized connective tissue fragility [3,4].